The current view of PDA; as an anxiety driven need to remain in control, certainly echoes in our family. The pursuit of more knowledge throughout this journey has been part of my own need to feel more in control. This has driven me to explore some of the many questions around PDA. One of these questions…
Indirectly, society, my friends and family, Facebook and my conditioning, are all telling me, that I should be sad today. I should be sad that my son should be starting his first day at school today and that he is not. I sense the eyes of onlookers. I hear the whispers of concern. I am…
In the peace and quiet, when I am attuned and connected to you, my child, I am sure, I am confident and I know what you need. In the peace and quiet, when I am not repeating in my mind all the what if questions I have heard this week, I am clear, I am…
Kristy Forbes - Autism & Neurodiversity Support Specialist and Fan from Roarheart, provide so much insight in their amazing new podcasts @FightandFawn. I value the content of what they are sharing very much. I wanted to take a moment to highlight one of the points they make about Education. They highlight the importance of providing…
In this article I hope to describe how Dr Stephen Porges's theory of Neuroception has helped us, as Parents, to develop greater insight into what might be happening for our Autistic son when he is faced with "demands". This will provide a context for my hypothesis that: Highly sensitive Neuroception may be at the heart…
Positive Autistic identity is at the heart of our Autistic children's ability to achieve and sustain emotional well being. Autism is not an add on or something a person has. This means we cannot separate autism from our child and love them, but not "it". My son is Autistic and I love that he is…
I wrote this short fantasy/reflective piece before setting up on wordpress, so it just sat as an early post on my Facebook page. I decided to tweak it and put it into blog format as my focus piece for PDA Day. It is about what things could look like once provision; committed to Improving Outcomes…
It is time to stop describing SEND parents as “Anxious”. All too often we hear or read statements where the parent of a child with special educational needs or disabilities (SEND) is labelled as “anxious”. Such statements can often be underpinned with judgemental and critical tones. Too many professionals who are not qualified to do…
Many of us will have heard similar phrases in relation to how our neurodiverse children cope with playgroups, school and other complex multisensory environments. "He'll soon get used to it!" "He'll be alright once he's settled in!" "She's fine once she's here!" But what happens when they're not fine and when they're really not getting…
This is a letter written to help a dance teacher understand William's needs before his first lesson. I've kept it as a starting point for other letters. I adjust the content each time, including or excluding information; on a need to know basis, depending on the recipient and setting. I always keep William's well being…
